A Global Advocate Transforming Rare Disease Awareness Through Personal Courage and Cross-Continental Impact
In a world where rare disease patients often struggle in silence, waiting years for answers and even longer for understanding, voices like that of Lea Jabre rise with remarkable clarity and courage. This edition honors a woman whose life journey spans continents and cultures, yet whose purpose is anchored in something profoundly universal: the belief that every human being deserves dignity, community, and compassionate recognition. Lea is more than an advocate. She is a global connector, a storyteller, and a bridge between medical realities and human experience.
On Cover
Lea Jabre
Global Advocate for Rare & Autoimmune Diseases Organizations: Bent Not Broken Autoimmune & Living with Stiff Person Syndrome Heart to Heart
When Lea Jabre describes herself, she speaks with the ease of someone who has truly become a citizen of the world. Her journey spans France, Spain, the United Kingdom, Lebanon, and The Gambia—each destination leaving an indelible mark on her identity and her mission. Yet this geographical odyssey represents far more than a collection of passport stamps. It embodies a lived understanding of how culture shapes compassion, how borders dissolve before human suffering, and how one person’s courage can resonate across continents.
Patty de Vries
Chief Experience Officer of Living Well USA, LLC
In the predawn darkness of countless training sessions, Patty de Vries measured her worth in repetitions and distance. As a nine-time NCAA All-American who competed at the Olympic Trials, she embodied the relentless pursuit of “more, farther, better” that defines elite athletics. Yet beneath the medals and accolades, a deeper question was emerging: What happens when external achievements don’t fill the inner void?
Dr. Rochel Marie Lawson
CEO & Founder of All Day Cable, Inc. & Blissful Living 4 U
In the heart of Silicon Valley, where innovation meets ambition and dreams are either made or shattered, Dr. Rochel Marie Lawson carved a path that had never existed before. Her story begins not with a business plan or venture capital meeting, but with a profound moment of recognition that would transform industries and inspire generations of women worldwide.
